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My experience with work placements and spondyloarthritis

During my degree I’ve had completed a number of work placements for my physiotherapy course in a variety of settings, all while living with spondyloarthritis. While some of these were quite light work, others took a lot of effort and communication with my educators proved to be crucial.

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The backstage of looking healthy: acting with ankylosing spondylitis

“How much dancing will there be in this show..?” That’s one of the first questions that goes through my head when I’m looking for a new acting job. And no, not just because my version of dancing isn’t unlike a toddler’s on a day of high sugar intake. It’s because when you’ve got ankylosing spondylitis, dancing for hours straight day after day is not the easiest and the most fun you’re going to have.

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My experience with studying and spondyloarthritis

Studying with spondyloarthritis can prove to be challenging in so many ways, however there are some tricks that can make it a little bit easier. I’ve spent my entire time at Uni balancing a social life, uni work and my arthritis – or maybe “juggling” would be a better term for it. 

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The Intimacy Puzzle

Intimacy and sex are both subjects that often do not get enough attention in the AS or the disability community. I remember feeling overwhelmed and shy, not knowing who I could ask about these subjects as my specialist or family practitioner would say to me that “I will eventually figure it out” or “if you are in too much pain then you shouldn’t be intimate.” I have to say I was a bit shocked by the response and the unwillingness to even discuss how AS would affect my relationships, intimacy and intercourse. 

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Things to keep in mind when travelling with ankylosing spondylitis.

Travelling is one of these great things that always leave you with a desire to see more, but with ankylosing spondylitis it can be a bit of a challenge. However, you just have to be a little bit clever about planning your travels, and figuring out what works for you. I am fortunate enough to have travelled a lot since being diagnosed. I am certainly not an authority, but I will share some tips and tricks that I have learnt along the way.

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Changing life through Zumba!

Life is full of unexpected things. Sometimes the unexpected can change your whole attitude towards the world in a good or a bad way. To my relief, having AS didn’t mean I had to give up dancing and along the way I also discovered something that changed my life: Zumba.

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Never giving up with ankylosing spondylitis

It all started 7 years ago, I was in a lot of pain, so much pain! I was at home hosting my brother’s birthday party and I couldn’t hide the pain any longer. I went to my bedroom and closed the door, thinking and wishing that I will be better after some stretching. I got on the floor and then I couldn’t move, I couldn’t get back on my feet, even breathing hurt, I tried to scream for help, but the pain was too much plus the door was closed and the crowd was too far from me.

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