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Game of Flows: a sequence to help you regain the Iron Throne

This is not a happy, light-hearted yoga practice that will bring peace and rainbows to your heart. Oh no. This super-short sequence is about death, madness, betrayal and manifesting whatever you damn well please. And wargs. With the season finale of “Game of Thrones” looming, you need to get into the right place, and that place is less zen studio and more cold, dark dungeon full of reincarnated dead people and pissed off dragons.

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Keep going, there’s a hope in motion!

After looking at maps for hours, I developed a desire to go out there, explore and discover. So, in 2009 I decided to cycle from Switzerland to China. Since then I’ve cycled more than 40,000km, crossed 28 countries, exchanged thousands of smiles and fulfilled many incredible dreams!
However, my world was shaken last year. I discovered a new companion in my life called ankylosing spondylitis.

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My Battle With An Invisible Illness

“Move towards the ball!” shouted my friends, as I struggled to limp towards their simple passes on the football pitch.

I was just eighteen, but I felt like I had the body of an 80-year-old. I couldn’t play sport. I couldn’t walk up the stairs properly on some days. It even hurt to take deep breaths. Anything which involved some degree of movement – I couldn’t do it.

Looking back, it was obvious that something was seriously wrong with me.

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The Gorilla In Your House

Acquiring a disability is a bit like getting home to find there’s a gorilla in your house. You contact the approved and official channels to get rid of infestations of wild animals (in this case, the NHS) and they umm and aah and suck air in through their teeth before saying something roughly equivalent to “what you’ve got ‘ere, mate, is a gorilla, and there ain’t really a lot what we can do about them, see…” before sending you back home to the gorilla’s waiting arms.

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Ankylosing Spondylitis may be a curse, but it’s not your Azkaban

Do you remember that scene in “Harry Potter and The Philosopher’s Stone” when Hermione says Petrificus Totalus and Neville’s body becomes stiff and rigid just before he falls to the ground? Being diagnosed with a disease can feel like this. Like a curse has been cast upon you and paralysed you. Ankylosing Spondylitis (AS) especially so, given its hallmark symptoms of pain and stiffness. 

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Deducing my Ankylosing Spondylitis

As I am a 17 years old, in my years of youth, I basically think I know everything about everything, (as every teen does) but, I can honestly admit, I had not a clue what ankylosing spondylitis was until a few years ago when, ironically, my knowledge expanded.

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Mind Management

By reading this, you’re probably hoping to hear a positive story you can connect with. By reading this, you perhaps feel the need to be inspired or be given directions to follow. But by reading this, you have already taken the first steps down your own path, as you’ve decided to seek help, learn about your condition or take comfort in knowing you’re not alone. So give yourself some credit, you’ve done well.

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AS, Anti-inflammatory Drugs & Rock’n’Roll!

You won’t be jealous of my rock ‘n’ roll lifestyle – all the long drives, carrying heavy gear and the late, sober nights hanging around dingy, distant venues are worlds away from the common perception. I’ve never thrown a TV out of a hotel room window but this is mostly because I have ankylosing spondylitis and my arthritic back probably couldn’t handle it. The only drugs I take are prescribed and tightly controlled by my Rheumatologist.

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Lucie and Jordan, coping with AS together

Ankylosing spondylitis doesn’t just affect the person with the condition. It can affect the whole family. This is one couple’s story of how they have coped with AS. On 1 October, Lucie is taking on the Cardiff Half Marathon to raise money for NASS and awareness of AS.

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