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Technology can provide really useful tools for improving your health and fitness and, importantly, can help you track your progress to help maintain your motivation. It can also be really helpful when managing a condition like ankylosing spondylitis to limit symptoms you experience and monitor them. I’d like to share some apps that may be useful for you to improve your health and work towards your goals.read more
Russ Welch is 35 years young, he’s been Zumba instructor for over a year now and still learning. He was born deaf and as a result he’s 85% deaf in both ears. He also has ankylosing spondylitis which affects and can limit the movement in his back.
‘My health has always been at the forefront of my difficulties, but I seem to manage well in my classes now due to Zumba enhancing my flexibility, I am surprisingly 10 cm’s more bendy!’
I’ve always loved animals; from the smallest bugs to the biggest mammals. So having pets was an obvious goal but I’d never anticipated how it would affect my life with ankylosing spondylitis.read more
I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.read more
My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.read more
I recently headed off backpacking around Europe with my friend. You can see our route on the picture above. I was a bit apprehensive. It’s the first time I’ve travelled so far, I’d be travelling across 6 different countries, and the first time I’ve backpacked.read more
I sat at the other side of the desk to my rheumatologist, something I was used to by this point. But this wasn’t quite the normal visit. My mum sat slightly behind me, questioning the Doctor on what the solution was to all my problems. Nothing could prepare me for what I was about to hear. “This condition is incurable.” My heart sank.read more
Ankylosing spondylitis can be an overwhelming diagnosis. Luckily, there are lots of small steps that you can take each day to help manage your symptoms and reduce the impact they have on your daily life.read more
I’m sure when you were diagnosed with AS you thought ‘what does this mean for my future and my relationship?’ That thought certainly crossed my mind as I sat in my doctors office listening to my test results.read more
When I learned about ankylosing spondylitis it was immediately made clear that it’s not simply “back pain”. I can relate. I’m so sick of people assuming I’ve just hurt my knees somehow. Yet, these personal frustrations have helped me realize how important it is to listen to people with different experiences, and not immediately try to fix them, but learn from them.read more