Life

Live happily and comfortably despite having ankylosing spondylitis

Travelling

Advice on travelling with ankylosing spondylitis

Keep going, there’s a hope in motion!

After looking at maps for hours, I developed a desire to go out there, explore and discover. So, in 2009 I decided to cycle from Switzerland to China. Since then I’ve cycled more than 40,000km, crossed 28 countries, exchanged thousands of smiles and fulfilled many incredible dreams!
However, my world was shaken last year. I discovered a new companion in my life called ankylosing spondylitis.

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Your Summer Festival Guide pt I – Before you go

Welcome to Your Summer Festival Guide! It’s not ‘ours’ it’s definitely ‘yours’, as we asked the ASone community to share their tips and advice on going to festivals. We had such a great response we thought we’d publish it in two parts.

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Lifestyle

Everything that’s helpful for living with ankylosing spondylitis. 

Russ journey to eat, sleep and breath Zumba

Russ Welch is 35 years young, he’s been Zumba instructor for over a year now and still learning. He was born deaf and as a result he’s 85% deaf in both ears. He also has ankylosing spondylitis which affects and can limit the movement in his back.
‘My health has always been at the forefront of my difficulties, but I seem to manage well in my classes now due to Zumba enhancing my flexibility, I am surprisingly 10 cm’s more bendy!’ 

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Arthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis

I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.

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Relationships 

Your loved ones and ankylosing spondylitis

The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

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Pink Elephants and World of Warcraft

I am Canadian and, well, here in Canada, we have maple syrup in abundance, and the glorious poutine which is chips smothered in gravy and cheese curds. Also, I’m HLA-B27 positive and this is my story.

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Mind and Body

Your mental and physical wellness with ankylosing spondylitis

Arthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis

I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.

read more

The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

read more

Incurable, the word that changed my life

I sat at the other side of the desk to my rheumatologist, something I was used to by this point. But this wasn’t quite the normal visit. My mum sat slightly behind me, questioning the Doctor on what the solution was to all my problems. Nothing could prepare me for what I was about to hear. “This condition is incurable.” My heart sank.

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Exercises for AS on the go!

Back to Action is an exercise programme designed for people with AS. 

It has been created by physiotherapists working with NASS, the exercise therapists and doctors who treat military personnel with AS at Headley Court.

It uses the most up to date knowledge from the fields of physiotherapy and sports medicine.

You can download our Back to Action App for free from

googleplay appstore

Want to find out more?

Visit our main site for much more information and resources.

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