Life

Live happily and comfortably despite having ankylosing spondylitis

Travelling

Advice on travelling with ankylosing spondylitis

Keep going, there’s a hope in motion!

After looking at maps for hours, I developed a desire to go out there, explore and discover. So, in 2009 I decided to cycle from Switzerland to China. Since then I’ve cycled more than 40,000km, crossed 28 countries, exchanged thousands of smiles and fulfilled many incredible dreams!
However, my world was shaken last year. I discovered a new companion in my life called ankylosing spondylitis.

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Your Summer Festival Guide pt I – Before you go

Welcome to Your Summer Festival Guide! It’s not ‘ours’ it’s definitely ‘yours’, as we asked the ASone community to share their tips and advice on going to festivals. We had such a great response we thought we’d publish it in two parts.

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Lifestyle

Everything that’s helpful for living with ankylosing spondylitis. 

Doodles Dealing with Arthritis

When I learned about ankylosing spondylitis it was immediately made clear that it’s not simply “back pain”. I can relate. I’m so sick of people assuming I’ve just hurt my knees somehow. Yet, these personal frustrations have helped me realize how important it is to listen to people with different experiences, and not immediately try to fix them, but learn from them.

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Smoking with ankylosing spondylitis? The worst idea ever!

Nowadays, it’s a widely accepted fact that smoking tobacco is harmful to your health in so many ways. In fact, an estimated 80,000 people die each year from diseases caused by smoking in the UK alone. Several scientific research studies have found tobacco smoking can worsen your ankylosing spondylitis, especially if you’re one of the heavy smokers.

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Pink Elephants and World of Warcraft

I am Canadian and, well, here in Canada, we have maple syrup in abundance, and the glorious poutine which is chips smothered in gravy and cheese curds. Also, I’m HLA-B27 positive and this is my story.

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Keep going, there’s a hope in motion!

After looking at maps for hours, I developed a desire to go out there, explore and discover. So, in 2009 I decided to cycle from Switzerland to China. Since then I’ve cycled more than 40,000km, crossed 28 countries, exchanged thousands of smiles and fulfilled many incredible dreams!
However, my world was shaken last year. I discovered a new companion in my life called ankylosing spondylitis.

read more

 

Relationships 

Your loved ones and ankylosing spondylitis

Pink Elephants and World of Warcraft

I am Canadian and, well, here in Canada, we have maple syrup in abundance, and the glorious poutine which is chips smothered in gravy and cheese curds. Also, I’m HLA-B27 positive and this is my story.

read more

Lucie and Jordan, coping with AS together

Ankylosing spondylitis doesn’t just affect the person with the condition. It can affect the whole family. This is one couple’s story of how they have coped with AS. On 1 October, Lucie is taking on the Cardiff Half Marathon to raise money for NASS and awareness of AS.

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Mind and Body

Your mental and physical wellness with ankylosing spondylitis

Doodles Dealing with Arthritis

When I learned about ankylosing spondylitis it was immediately made clear that it’s not simply “back pain”. I can relate. I’m so sick of people assuming I’ve just hurt my knees somehow. Yet, these personal frustrations have helped me realize how important it is to listen to people with different experiences, and not immediately try to fix them, but learn from them.

read more

Keep going, there’s a hope in motion!

After looking at maps for hours, I developed a desire to go out there, explore and discover. So, in 2009 I decided to cycle from Switzerland to China. Since then I’ve cycled more than 40,000km, crossed 28 countries, exchanged thousands of smiles and fulfilled many incredible dreams!
However, my world was shaken last year. I discovered a new companion in my life called ankylosing spondylitis.

read more

The Gorilla In Your House

Acquiring a disability is a bit like getting home to find there’s a gorilla in your house. You contact the approved and official channels to get rid of infestations of wild animals (in this case, the NHS) and they umm and aah and suck air in through their teeth before saying something roughly equivalent to “what you’ve got ‘ere, mate, is a gorilla, and there ain’t really a lot what we can do about them, see…” before sending you back home to the gorilla’s waiting arms.

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Exercises for AS on the go!

Back to Action is an exercise programme designed for people with AS. 

It has been created by physiotherapists working with NASS, the exercise therapists and doctors who treat military personnel with AS at Headley Court.

It uses the most up to date knowledge from the fields of physiotherapy and sports medicine.

You can download our Back to Action App for free from

googleplay appstore

Want to find out more?

Visit our main site for much more information and resources.

More Info

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