Life

Live happily and comfortably despite having ankylosing spondylitis

Travelling

Advice on travelling with ankylosing spondylitis

Not Today! – Ben’s message to ankylosing spondylitis

Ben experienced a series of blows in a short space of time but coped brilliantly with both ankylosing spondylitis and diabetes. He is currently at a six month conservation internship in the Peruvian Amazon jungle (as you can see in the video!) and is absolutely loving it, telling AS ‘Not Today!’ on a daily basis. 

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Things to keep in mind when travelling with ankylosing spondylitis.

Travelling is one of these great things that always leave you with a desire to see more, but with ankylosing spondylitis it can be a bit of a challenge. However, you just have to be a little bit clever about planning your travels, and figuring out what works for you. I am fortunate enough to have travelled a lot since being diagnosed. I am certainly not an authority, but I will share some tips and tricks that I have learnt along the way.

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Lifestyle

Everything that’s helpful for living with ankylosing spondylitis. 

Not Today! – Ben’s message to ankylosing spondylitis

Ben experienced a series of blows in a short space of time but coped brilliantly with both ankylosing spondylitis and diabetes. He is currently at a six month conservation internship in the Peruvian Amazon jungle (as you can see in the video!) and is absolutely loving it, telling AS ‘Not Today!’ on a daily basis. 

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Life with an Invisible Illness

Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice.

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Relationships 

Your loved ones and ankylosing spondylitis

The Intimacy Puzzle

Intimacy and sex are both subjects that often do not get enough attention in the AS or the disability community. I remember feeling overwhelmed and shy, not knowing who I could ask about these subjects as my specialist or family practitioner would say to me that “I will eventually figure it out” or “if you are in too much pain then you shouldn’t be intimate.” I have to say I was a bit shocked by the response and the unwillingness to even discuss how AS would affect my relationships, intimacy and intercourse. 

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The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

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Mind and Body

Your mental and physical wellness with ankylosing spondylitis

Not Today! – Ben’s message to ankylosing spondylitis

Ben experienced a series of blows in a short space of time but coped brilliantly with both ankylosing spondylitis and diabetes. He is currently at a six month conservation internship in the Peruvian Amazon jungle (as you can see in the video!) and is absolutely loving it, telling AS ‘Not Today!’ on a daily basis. 

read more

Life with an Invisible Illness

Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice.

read more

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Exercises for AS on the go!

Back to Action is an exercise programme designed for people with AS. 

It has been created by physiotherapists working with NASS, the exercise therapists and doctors who treat military personnel with AS at Headley Court.

It uses the most up to date knowledge from the fields of physiotherapy and sports medicine.

You can download our Back to Action App for free from

googleplay appstore

Want to find out more?

Visit our main site for much more information and resources.

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