Mind and Body

Your mental and physical wellness with ankylosing spondylitis

Ankylosing spondylitis, it’s not a competition!

Ankylosing spondylitis is not a competition – seems pretty simple, right? It is is a cruel condition. An invisible disease. If you read this, you probably live with it and endure it in your individual way. There is no one piece of advice that can apply to everyone, as everyone has different tolerances, and everyone’s condition develops in different ways. However, we all need to do the most we can to try and keep healthy.

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Diagnosed with ankylosing spondylitis. Journey to accepting myself again.

When I was diagnosed with ankylosing spondylitis five years ago, I was far from accepting it. All I wanted was to be ‘normal’. At first, I kept the diagnosis to myself as I struggled to come to terms with it, let alone admitting it out loud. I felt that people around me already don’t understand my pain and limitations. I believed they were unlikely to understand the diagnosis as well.

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The Intimacy Puzzle

Intimacy and sex are both subjects that often do not get enough attention in the AS or the disability community. I remember feeling overwhelmed and shy, not knowing who I could ask about these subjects as my specialist or family practitioner would say to me that “I will eventually figure it out” or “if you are in too much pain then you shouldn’t be intimate.” I have to say I was a bit shocked by the response and the unwillingness to even discuss how AS would affect my relationships, intimacy and intercourse. 

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Running with Ankylosing Spondylitis

Running may not be a physical activity for everyone with ankylosing spondylitis. The high impact of this exercise can cause extra stress on the joints of the legs and the spine. However, many people not only find running beneficial but clearly develop a passion for it! If you want to run with AS these are our top tips:

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Coping with fatigue in ankylosing spondylitis

‘Everyone gets tired’, I’m sure you’ve heard this annoying comment so many times. But chronic and long-term fatigue in ankylosing spondylitis isn’t like tiredness. It can really wear you down and leave you feeling absolutely drained. It can last for days or weeks at a time and no amount of sleep or rest will relieve it. Some people describe it as overwhelming. Unfortunately, fatigue is common among people with AS and there’s a big chance you will experience it at some point.

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Never giving up with ankylosing spondylitis

It all started 7 years ago, I was in a lot of pain, so much pain! I was at home hosting my brother’s birthday party and I couldn’t hide the pain any longer. I went to my bedroom and closed the door, thinking and wishing that I will be better after some stretching. I got on the floor and then I couldn’t move, I couldn’t get back on my feet, even breathing hurt, I tried to scream for help, but the pain was too much plus the door was closed and the crowd was too far from me.

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