Mind and Body

Your mental and physical wellness with ankylosing spondylitis

The Intimacy Puzzle

Intimacy and sex are both subjects that often do not get enough attention in the AS or the disability community. I remember feeling overwhelmed and shy, not knowing who I could ask about these subjects as my specialist or family practitioner would say to me that “I will eventually figure it out” or “if you are in too much pain then you shouldn’t be intimate.” I have to say I was a bit shocked by the response and the unwillingness to even discuss how AS would affect my relationships, intimacy and intercourse. 

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Running with Ankylosing Spondylitis

Running may not be a physical activity for everyone with ankylosing spondylitis. The high impact of this exercise can cause extra stress on the joints of the legs and the spine. However, many people not only find running beneficial but clearly develop a passion for it! If you want to run with AS these are our top tips:

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Coping with fatigue in ankylosing spondylitis

‘Everyone gets tired’, I’m sure you’ve heard this annoying comment so many times. But chronic and long-term fatigue in ankylosing spondylitis isn’t like tiredness. It can really wear you down and leave you feeling absolutely drained. It can last for days or weeks at a time and no amount of sleep or rest will relieve it. Some people describe it as overwhelming. Unfortunately, fatigue is common among people with AS and there’s a big chance you will experience it at some point.

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Never giving up with ankylosing spondylitis

It all started 7 years ago, I was in a lot of pain, so much pain! I was at home hosting my brother’s birthday party and I couldn’t hide the pain any longer. I went to my bedroom and closed the door, thinking and wishing that I will be better after some stretching. I got on the floor and then I couldn’t move, I couldn’t get back on my feet, even breathing hurt, I tried to scream for help, but the pain was too much plus the door was closed and the crowd was too far from me.

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Arthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis

I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.

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The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

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Incurable, the word that changed my life

I sat at the other side of the desk to my rheumatologist, something I was used to by this point. But this wasn’t quite the normal visit. My mum sat slightly behind me, questioning the Doctor on what the solution was to all my problems. Nothing could prepare me for what I was about to hear. “This condition is incurable.” My heart sank.

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