Living with ankylosing spondylitis

Not Today! – Ben’s message to ankylosing spondylitis

Ben experienced a series of blows in a short space of time but coped brilliantly with both ankylosing spondylitis and diabetes. He is currently at a six month conservation internship in the Peruvian Amazon jungle (as you can see in the video!) and is absolutely loving it, telling AS ‘Not Today!’ on a daily basis. 

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Life with an Invisible Illness

Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice.

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Taking back control from ankylosing spondylitis

Even with right medical treatment for ankylosing spondylitis it can be easy to lose control of your life and develop unhealthy habits. Sometimes it can spiral out of control and lead to a point where it seems there’s no return. Adam managed to come back from what appeared to be a hopeless situation and managed to transform both his body and life. His story not only shows that it’s never too late to get back in control, but also underlines the importance of professional support and healthy lifestyle in AS.

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parkrun for people with ankylosing spondylitis

Parkruns are fun and sociable opportunities for people with ankylosing spondylitis to participate in some physical activity. They are free 5k events, coordinated entirely by local volunteers, that take place every Saturday morning in 540 parks and open spaces across the UK. Parkrun is open to everyone and is whatever you want it to be – you can walk, run or volunteer – and each event finishes with a chat and a cuppa. 

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Ankylosing spondylitis, it’s not a competition!

Ankylosing spondylitis is not a competition – seems pretty simple, right? It is is a cruel condition. An invisible disease. If you read this, you probably live with it and endure it in your individual way. There is no one piece of advice that can apply to everyone, as everyone has different tolerances, and everyone’s condition develops in different ways. However, we all need to do the most we can to try and keep healthy.

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Diagnosed with ankylosing spondylitis. Journey to accepting myself again.

When I was diagnosed with ankylosing spondylitis five years ago, I was far from accepting it. All I wanted was to be ‘normal’. At first, I kept the diagnosis to myself as I struggled to come to terms with it, let alone admitting it out loud. I felt that people around me already don’t understand my pain and limitations. I believed they were unlikely to understand the diagnosis as well.

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