Relationships

Your loved ones and ankylosing spondylitis

The Intimacy Puzzle

Intimacy and sex are both subjects that often do not get enough attention in the AS or the disability community. I remember feeling overwhelmed and shy, not knowing who I could ask about these subjects as my specialist or family practitioner would say to me that “I will eventually figure it out” or “if you are in too much pain then you shouldn’t be intimate.” I have to say I was a bit shocked by the response and the unwillingness to even discuss how AS would affect my relationships, intimacy and intercourse. 

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The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

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Pink Elephants and World of Warcraft

I am Canadian and, well, here in Canada, we have maple syrup in abundance, and the glorious poutine which is chips smothered in gravy and cheese curds. Also, I’m HLA-B27 positive and this is my story.

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Lucie and Jordan, coping with AS together

Ankylosing spondylitis doesn’t just affect the person with the condition. It can affect the whole family. This is one couple’s story of how they have coped with AS. On 1 October, Lucie is taking on the Cardiff Half Marathon to raise money for NASS and awareness of AS.

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