Welcome to ASoneBringing young people with axial spondyloarthritis and ankylosing spondylitis together.
We’re here to inform and educate on ankylosing spondylitis, but we also want you to be able to share your thoughts, feelings and experiences with each other.
Meetups Last Year
It all started 7 years ago, I was in a lot of pain, so much pain! I was at home hosting my brother’s birthday party and I couldn’t hide the pain any longer. I went to my bedroom and closed the door, thinking and wishing that I will be better after some stretching. I got on the floor and then I couldn’t move, I couldn’t get back on my feet, even breathing hurt, I tried to scream for help, but the pain was too much plus the door was closed and the crowd was too far from me.read more
Technology can provide really useful tools for improving your health and fitness and, importantly, can help you track your progress to help maintain your motivation. It can also be really helpful when managing a condition like ankylosing spondylitis to limit symptoms you experience and monitor them. I’d like to share some apps that may be useful for you to improve your health and work towards your goals.read more
Russ Welch is 35 years young, he’s been Zumba instructor for over a year now and still learning. He was born deaf and as a result he’s 85% deaf in both ears. He also has ankylosing spondylitis which affects and can limit the movement in his back.
‘My health has always been at the forefront of my difficulties, but I seem to manage well in my classes now due to Zumba enhancing my flexibility, I am surprisingly 10 cm’s more bendy!’
I’ve always loved animals; from the smallest bugs to the biggest mammals. So having pets was an obvious goal but I’d never anticipated how it would affect my life with ankylosing spondylitis.read more
I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.read more
My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.read more
Exercises for AS on the go!
Back to Action is an exercise programme designed for people with AS.
It has been created by physiotherapists working with NASS, the exercise therapists and doctors who treat military personnel with AS at Headley Court.
It uses the most up to date knowledge from the fields of physiotherapy and sports medicine.
You can download our Back to Action App for free from