Express Yourself

Have your say! Ask questions, share your stories and experiences

Guest Blogs

Blogs and articles by our community

Russ journey to eat, sleep and breath Zumba

Russ Welch is 35 years young, he’s been Zumba instructor for over a year now and still learning. He was born deaf and as a result he’s 85% deaf in both ears. He also has ankylosing spondylitis which affects and can limit the movement in his back.
‘My health has always been at the forefront of my difficulties, but I seem to manage well in my classes now due to Zumba enhancing my flexibility, I am surprisingly 10 cm’s more bendy!’ 

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Arthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis

I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.

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The Butterfly Effect of Ankylosing Spondylitis

My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.

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Your Posts

Express your opinions, share your stories, ask questions.

Let us know about your music festival experiences!

Hello Folks!   We want to create a music festival guide for all those with AS, but we need your help to get it done properly. This message goes to all festival-goers, camping enthusiasts, globetrotters and music fans who’s never missed a gig. Let us know what’s...

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Welcome to ASone

Hi there, folks! I’m Jakub, your friendly neighbour ASone admin! Welcome to Your Posts section where you can have your own say on anything related to ankylosing spondylitis! Use this space to tell us your story, share your experiences, opinions, tips & tricks,...

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Video Gallery

Useful and fun videos from ASone and NASS

Managing Your Ankylosing Spondylitis

This video explains how ankylosing spondylitis (axial spondyloarthritis) (AS) is managed in the UK. It covers physiotherapy and exercise; the medications used and gives lifestyle advice.

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Arthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis

I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.

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NASS, ASone and the role of EULAR in ankylosing spondylitis

How does NASS support people with AS? Check out all our services. We are also introducing a brand new service called ASone for young people living with AS. The video also explains the role of the European League Against Rheumatism (EULAR) in advancing scientific knowledge and understanding.

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Exercises for AS on the go!

Back to Action is an exercise programme designed for people with AS. 

It has been created by physiotherapists working with NASS, the exercise therapists and doctors who treat military personnel with AS at Headley Court.

It uses the most up to date knowledge from the fields of physiotherapy and sports medicine.

You can download our Back to Action App for free from

googleplay appstore

Want to find out more?

Visit our main site for much more information and resources.

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